More Surgical prospects: Big Choices ahead

I can’t breathe, I am gasping for air. Panic Attack, I am drowning, I am shaking unable to think of anything but the worst case scenario.

Panic Attack. Please Stop. Please let me breathe. Please let me worry less. Please I am not as strong as you think I am.

Too many issues going on in my head, I want to cry, I do not want to be alone.

My body has been cut up enough, psychologically I am scarred enough.

Today I heard the news. Received a letter, more interventions can be taken to ensure that movement will be as easy as possible for me in the near future, the letter prompted by my long term review of my previous surgery that was on the 15th of September 2008- the review conducted in January a Gait analysis. My mind is going crazy, because to be honest I do not know if I want to go through with another surgical procedure.

 Since my last procedure due to the traumatic and extensive nature I have been diagnosed with Complex Post Traumatic Stress disorder and the sheer thought of having another surgical procedure has me experiencing traumatic flashbacks.

 I think the fact that the choice this time is entirely my own- makes the decision harder. There are a lot more things to consider this time. Psychologically it could cause more damage; I am a fragile daffodil, much more fragile than I once was. Not only that I am now in university, living independently, trying to complete an undergraduate degree. I had plans by 2016 to be undertaking a Masters’ degree in social work and to be working full time soon after that as a social worker. What will this mean for all of these plans if I choose to go ahead with more surgery?

If I don’t what will this mean for my degree of movement? Will I be able to move enough in the future so I am able to be practicing as a social worker?  Many questions ponder my mind.

That’s Life. A glimpse of mine anyway

This is no disrespect to anyone who has ever tried to better my life, for that I am so grateful but ever since I was a child. The fix her approach was adopted, everybody around me did everything they could with the hope that I would someday walk like others. I have never felt like I have ever had the opportunity to accept that this is my life, whether I like it or not- I will not magically wake up and find myself living the same way as an able bodied individual. So I have words for you, reading this; physically I am not broken, physically I was born this way, yes! Surgeries can and have improved my life but they will never entirely fix me because I was never meant to be fixed. I have had enough. It’s time I make a choice for me not because I need to be fixed, but because I need to live with the way I am forever.

© COPYRIGHT 2012-2014 ‘Beautiful Contemplations’ Founded by Shaz Sturk.

 

broader-line Personality Traits: Just a part of my story

…. sigh…

I don’t even know where to begin, everything seems so mixed up & crazy right now.

This week has honestly been one of my toughest weeks in a while.

I have been triggered so many times- I’m hyper vigilant- that is absolutely exhausting.

A shadow, is seen and my heart races one hundred miles an hour.

 A noise heard, flight or fight response is activated, I race to protect those near me. Ready to fight off threats or to do what I have to survive.

Over the past few days, there have been instances where I have slept for hours on end to the point that I lost track of the day and time.

Complex Post Traumatic Stress disorder, I am still trying to understand it, and what it means for my future.

The one thing that has become clear throughout all of this: healing is not an overnight process. I question if I will ever fully heal. Everything feels like some crazy storm, and I am struggling to breathe.

I looked at one of my medical referrals last night. It lists my conditions:

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Borderline personality traits:

what the fuck is this? thoughts processing in my head. This explains why my thought patterns can be so up and down in a matter of minutes in some cases- complex PTSD a label has finally be found. I look at the list of symptoms– it fits, what the fuck does this mean though?

I went to therapy a few days back and it triggered me badly. I am terrified to go back into therapy, but I know I must. What scares me most is not the diagnosis- but understanding it and knowing that some people in my life will refuse to accept it. It is the lonely brought on by this disorder, my sometimes “manic” as I refer to it- thinking patterns, the ability for me to lose all sense of reality rapidly- dissociate myself from everything possible.

The more and more I try to put this to words, the more and more I fear that I will lose myself. I am a compassionate person, who cares so much for others- that will never stop despite this label.  Mental illness is just as much a condition as is a physical illness, but I think the thing that continues to hold me back in accepting all that has come my way recently is that what I am going through is not visible in the same manner that Cerebral Palsy is.

Stigma, scares me. Judgement scares me.

In an ideal world we would never experience stigma or judgement, but let’s face it we do not live in an ideal world- as I have recently understood very well.

Every time I tell my story I fear judgement and hatred.

I have always been viewed as a person of immense courage and strength, as some one who sees the glass half full rather than half empty. I know that many times the glass has been empty for me and that I have stuck in a negative head space, I won’t lie I have been very negative, well maybe not negative. Just Raw and Real.

 I refuse to sugar coat my experiences, just because people want me to see life positively. I don’t feel like it, I no longer feel like faking the happiness or that smile. I face a real life battle, one that I am not ashamed to admit. I have been thinking about things a lot lately and realized that people don’t look up to me because I am that “happy women”, they look up to me because I am real. Through me everyone can see a bit of themselves.

Everyone has times in there life where they have experienced pain, achievements, happiness. I am just one who is no longer afraid to put those milestones in view of the public eye. I will admit, there are times where I lose complete control of my emotions- to the point where they consume me.

This journey is mine. I don’t know if I will ever fully heal, but tomorrow I am going to try to brave the world.

xoXO

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© COPYRIGHT 2012-2014 ‘Beautiful Contemplations’ Founded by Shaz Sturk.

LifeLine: 13-11-14

KidsHelpline: 1800-55-1800

For additional hotlines and information please go to:

http://australia.gov.au/topics/health-and-safety/mental-health

Friendship: Tied together by Heart Strings

Hi  Beautiful Thinkers,

Friendship is such a beautiful thing. 

I know I could not get through the things I do without the support of my friends.

But true friends have been hard to come by for me, being chronically ill in so many different ways can make it so difficult to build connections with people. I know myself it is difficult to get up out of bed at times so making that face to face connection with people can sometimes be difficult and then I have the other issues of having to ask myself:

Will people accept me for me?

What will they think of me?

I still have to ask myself those questions on a semi-regular basis.

I used to all people were the same.

That all people bullied those who were different. 

That all people would see was my physical disability.

It would be impossible to make friends.

All of that changed, when I moved to university. I was hit by a sudden rush of excitement! when I came to the realization that most people embraced my differences. When I was younger I didn’t have any friends as running around and playing games like hide and seek were a challenge for me. 

Nowadays, through relief is here with amazing online sites like Livewire  ran by the Starlight Children’s Foundation

These days, I have out grown such wonderful support. I have so many wonderful friends on and offline.

My offline friends are the one’s I truly want to dedicate this post to.

Sometimes, when I become so tired and I cannot get out of bed my online friends are there to curve the feeling of loneliness, we are all equal.. typing not running. A lot of people are quick to critique social media, and I agree that you must be extremely careful when using it and “Use your head and keep your wits about you” as my Nan says but it can bring a lot of good to ones life too.

I have a few online friends who I am blessed to have in my life, we Skype one another, write and wipe away each others tears despite never having met face to face.. I could not imagine my life without some of them- teaching me from a distance so many things, we can not hug each other physically, but that does not matter because our friendship is tied together by our heart strings and we know that we are always there in each others heart.. something far more beautiful.

Image from Google

Image from Google

Shaz

xx

© COPYRIGHT 2012-2014 ‘Beautiful Contemplations’ Founded by Sharlene ‘Shaz’ Sturk

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Thank-you: A quick look of my year that was 2013

I am hurting today. Not mentally rather physically. Mentally I am strong today.

I sit here typing on the the screen I see before me, my hands all swollen, joints riddled with pain. You maybe asking yourself why is she blogging? Why is she putting herself through all that pain.

Blogging is one of my many passions. It allows me to voice my story and hopefully provide courage and hope to others. My blog posts over the last few days may seem a bit dark. But I can assure you that despite having to battle mental illnesses and more dark times than i’d like to my life isn’t always dark.

Aside from attending appointments for both my mental and physical illlnesses/disabilities, this year I was a mentor and ambassador for the Monash University Faculty of the Arts, I also engaged in public speaking and it was a community radio presenter at SYN Media I was apart of a show that raised awareness about disability and advocated for all types of issues relating to disability called Raise The platform presenting on such a show has built my confidence up so much, and has also allowed me to form friendships with some amazing people; whom I will be friends with for life.

Earlier in the year I was also asked to be a speaker on a diversity and inclusion panel for the Monash University 2013 Diversity and Inclusion week. Myself and other panel members spoke about our experiences and answered questions from audience members. Subsequently, I was asked if I would do an equity diversity profile; sharing my experiences with others. Of course I said Yes!

A few months later, I spoke about the significance of being selected for my university’s most prestigious program for up and coming leaders; Ancora Imparo. I spoke to potential applicants about the benefits and significance of the program for myself. I was so overwhelmed by the response to my words! I was amazed- that I inspired people. I was contacted by students a few weeks after that. Some of my words can be found here: http://monashcollege.edu.au/whats-happening/lifelong-learning-on-leadership.html

That was just this year. This was probably my most toughest year yet.

with several hospital admissions, severe chest and respiratory infections, changes in medication; the diagnosis of C-PSTD, attempts at leaving this world, sliced toes, sore backs and more. I had taken lots of time off college and with that my depression became worse as I was unsure if I would pass university or not. with the lingering diagnosis of Rheumatoid arthritis

But there were people who refused to give in up on me and I want to take a moment to type thank-you to them all.
My lecturers: your patience and time spent with me during my times of sickness to ensure I understood the content was amazing! to my Academic mentors who kept my spirits high and believed I would do well.

My friends, my family… Everyone Thank-you.

I did in fact pass uni with a credit, credit, distinction 🙂

So are you still wondering why I am typing? to give you hope.
It will be okay. No matter what 🙂

Keep Believin’ 

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COPYRIGHT 2013 ‘Beautiful Contemplations’ Founded by Shaz Hermione Sturk.

Recent Ramblings: Medical testing, dosage of medication, weight issues, exams and the Birthday of the BC community

“Hey there BC-ers”,

I am not sure exactly how to begin writing this post, I’ve had so much happening since I last posted it’s unbelievable. How about I just start from the beginning and hopefully that enables me to successfully post this post; and by successful I mean having written all that I wanted to write for this post.

Last week, I had to undergo some pretty traumatic medical procedures- a blood test  ultra-sound and X-ray. These are traumatic for me for a variety of reasons and have a lot to do with my past medical experiences, but what made things even more frustrating and traumatic was this: As soon as my vein see’s the needle coming; they disappear no matter what I do or how relaxed I am it always happens. The ultra-sound went well in the sense the staff were truly lovely and tried to make my experience as easy as possible.

I had to have the latter procedures done due to significant “non-injury” caused swelling in my left hand, arm and wrist- previously this had occurred but it was not sufficient to have testing done. The tests were done to investigate what is happening, as something has to be going on in order for such an thing to occur, the GP thought  it would be good to test for rheumatoid arthritis.

This week, the test results came back; not so positive; the bloods showed very little rheumatoid factor but, the anti-bodies in my blood were moderately high. After much talk with my GP it was decided that I best be referred on to a specialist to help us get a full diagnosis- it is strongly believed I have an autoimmune condition but as to which one(s) only a full diagnosis can help clarify. This would not only help to explain what is going on with my left hand, arm and wrist it may also help explain my sudden deterioration this year.

ALSO….This week

My medication “LexaPro” has eased in the sense that the hallucinations of “spiders and black bugs”  have decreased. However, my dosage has been increased.

This week though, was hard… I received a call from someone close to me “We’re so worried about you, you’ve gained so much weight since seeing you last,… “Can’t sleep, don’t know what’s going on  with you. Don’t get why you are depressed so much lately”. They proceeded to say to me that the last time they saw me was at my graduation from a highly prestigious leadership program- so thanks for making me associate what was supposed to be a positive night celebrating a fantastic achievement into a negative one- I now look at photo’s of the event and see nothing but a bowling ball. 

I got off the phone. Shaking unable to comprehend what I’d just heard. “YIPPIE” More invalidation just what I need. I was really angry because for the first time in a long time I chose to wear a dress to this event, and i actually felt semi-attractive for the first time in a long time. I’m still really hurt by such comments; because I don’t think they were very well thought about or constructed. I’ve just gotten out of a really deep dark place. I am still unsure of how I feel about me right now! Now I hate me more! 

I am stuck between this internal, external battle… I don’t know if what there saying is true because I am clouded with so much uncertainty about myself.. what I mean by that is this:

On the outside and to people who don’t know me well I present myself as someone who doesn’t care what others think, say or want to believe about me; I am someone who likes to present as a happy go lucky individual; someone who is as tough as ten bears. Probably the may reasons why this is said to me by people who meet me: “You seem happy and bubbly- not the kind of person to have depression”- that’s because the depression is not there all the time and I don’t allow it to define me 100% of the time. Some days sometimes leading to even weeks and months- it is hard to be bubbly and happy but the point i am making is that my depression isn’t always present in everything I do.

On the inside I am vulnerable, very afraid and hate myself. My blog is the only element I use other than mental health support where my true feelings are expressed.

As you imagine the situation about my weight has now made me feel self-conscious beyond belief. I only ate one meal yesterday and chewed on chewing gum for the remainder of the day so as to suppress hunger; as someone whose disability makes it difficult to exercise and rather painful too I might add this is a tough place to be.

EXAMS!!!! EXAMS!!!! EXAMS!!!!

Despite, all this. I have managed to complete all of my class assessment for the second year of my degree, and I am currently busily preparing to sit exams.. so busy, busy, busy.

Happy 1st Birthday- Beautiful Contemplation’s Want to share your story with the BC COMMUNITY?

Some of you may or may not be aware that on the 29th of November I will have been typing and sharing my stories under the name of Beautiful Contemplation’s for a year. And although i am the face of BC there are many admin and fans that support it and enable for the community to be what it is. SO to celebrate I thought I’d leave the floor open to you to share stories if you wish SO if you’d like to  head to https://www.facebook.com/BeautifulContemplations inbox us and let us know.

If you require assistance please call:

 LifeLine on: 13 11 14

 Or the KidsHelpline on: 1800 55 1800 

With Love,

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COPYRIGHT 2013 ‘Beautiful Contemplations’ Founded by Shaz Hermione Sturk.

Myself on the way to the graduation event  COPYRIGHT 2013 ‘Beautiful Contemplations’ Founded by Shaz Hermione Sturk.

Myself on the way to the graduation event
COPYRIGHT 2013 ‘Beautiful Contemplations’ Founded by Shaz Hermione Sturk.

Thanks Portia De Rossi for giving me hope when I thought I had nothing left.

Hey Beautiful Thinkers,

I hope you’re all well. I have been terribly unwell physically, struggling to breathe my chest fighting phlegm from a chest infection. Good news! Though I am on the mend with the help medication and chest therapy- this includes blowing bubbles in a cup filled halfway with water and then coughing up the phlegm and when in the shower coughing up the phlegm (the hot steam helps!). If I do not do such practices the phlegm becomes extremely hard to get rid of and the longer it stays there the riskier it is to my life. But I am on top of things with university and well and truly on the mend now and enjoying the down time that the Easter break brings before going back to university and studying, taking care of myself and volunteering.

I have recently just finished reading actress Portia De Rossi’s memoir: Unbearable Lightness a Story of Loss and Gain…. WOW!!!! I have never felt such an attachment to a book before. The memoir explores through her eyes her heart-felt journey battling eating disorders including anorexia and bulimia and accepting of herself for who she is rather than focusing on looks, her words so honest so courageous so; a journey so incredibly sad but beautiful and heartwarming.

I thought Portia De Rossi was a pretty incredible actress prior to reading her memoir; however, now she isn’t just an incredible actress in my eyes, she is an incredible human being, so courageous and brave having faced all that she did and come out the other side finding acceptance love and more. I don’t want to give too much of the memoir’s plot away as I think it should be read by all.

I could relate to words written by Portia, in so many different ways. There were so many occasions at one o’clock in the morning when I was overcome by tiredness but found it hard to put the book down, encouraging myself ‘come on just one more chapter’ one more chapter soon became five and before long I found myself asleep on the cover of my e-reader. I didn’t want to put the book down; I used it to escape my own pressures of life. The book became a source of hope for me very quickly, but I quickly found out that this book would not allow me to escape my pressures of life- pressures mainly placed on me by my own self. It made me face a lot of the things going on in my life; I couldn’t help but question aspects of my life that I perhaps would not have questioned if it were not for reading Portia’s memoir. That was okay, because although I was alone when asking myself these questions, I didn’t feel alone. I felt Portia had put words to my journey and to the journeys of many others, I would find myself in tears as I recognized my own journey through Portia’s words.

I saw myself, in amongst the words on the page: The pressure of maintaining a certain weight for modeling agencies- only my modeling agencies were my doctors, at every appointment making comments like ‘Sharlene watch your weight, your knees will struggle to carry lots of weight’ and well I can see their point. I was not as active as everyone else due to having a physical disability and they cared for my health’. I just wanted to eat whatever I wanted, whenever I wanted. I was young. Those who were close to me would often eco the sentiments of the doctors. It is important to note that I don’t blame them for their sentiments as they were said out of love and care for me and my health.

Before long I was 15, finding myself with a drill sergeant of my own- he has been in my life now for six long and tiresome years.

 In fact I distinctively remember I was around 15, when I got on my crutches and started pacing up and down the short drive way of my old house. Hoping that I would sweat, lose weight and ultimately silence the voice in my head:

Sharlene you’re a fat, worthless slob who will be extremely fat when she is older’

Before long my mum came outside after noticing what I was doing through the window and asked something along the lines of this:

Sharlene, what are you doing?’

‘Oh just trying to get fit you know how it is’

‘By pacing up and down the driveway- that’s silly!

I went inside.

In the years following: I would skip various meals: It was usually lunch because I could claim that learning how to make my own lunch was great for my own independence- no one ever argued with that’

I began comparing myself to my twin who was thin and I was the fat slob. She had been out with boys! I never had a relationship. I was not known for my beauty like she was! I WASN’T BEAUTIFUL I was the cripple everyone felt sorry for… after all how a woman in a wheelchair like myself could be considered beautiful. Much less be a relationship? It was not possible it isn’t possible.

Lots of factors have contributed to the way I feel about my weight now. Those thoughts are echoed the sergeant. Being called names like airport run way, or jokes made about my weight…I have a sense of humor but making jokes about weight is not right! I can cope with being called names like ‘r*tard or crip*le’ because after all in my mind they are reflective of my disability and I can never change that’ but my weight was something I could change at the times when I was unhappy with it.

I see myself as voluptuous; I fear both losing and gaining weight. Added  to that I no longer go dress shopping for really fancy/formal dresses because by the time I get around to doing it all the average sizes are gone and I am left feeling depressed, deflated and fat.. drill sergeant echoing:

‘See I told you, you were fat’

 Sergeant: One

Sharlene: Zero

Physically I am healthy despite my disability mentally some days I am a train wreck waiting to happen.

I too recognized how critical my ‘drill sergeant’ can be: He went from telling me I was fat, to telling me that I am a worthless piece of shit, who didn’t deserve to be here. To be happy and enjoy life’

He made me extremely depressed, and over anxious: Now I can’t wheel down the street without thinking what others think of me. Over the past year I have been engaged in treatment with a doctor and anxiety but I have never discussed with them about my associations with food.

You see as I move further into my dream of completing my college degree. I feel further and further distanced from my family whose aspirations are much more different to my own thus food for me in recent years especially has become an emotional attachment; something that won’t judge, something that I can love and be passionate about. I guess food helps to fill a void of loneliness and wanting to be loved. In addition to the latter, I have many other issues going on right now that I want to be honest with others who know me about.

I too am gay, and I know this because I don’t see myself being with a male partner, I find women much more beautiful, in tune with their emotions much more intriguing. I have known this for a long time and have expressed to some people close to me these things. I have battled with this since the age of 12, and have only recently placed a name to my feelings as recently as September of 2012 actually. I had a discussion with my grandma in January of 2013 and have recently come out to various friends most have been extremely supportive and proud of my courage at 21 to come out. I am still fearful in many ways I guess putting a name to feelings takes courage but acting on such feelings takes even more courage.

But in addition to accepting myself as gay, I have to find some level of acceptance within my heart for the fact that I have this physical disability and nothing I can do will ever change it. Through reading Portia’s Memoir I have learnt the importance of all that you are, for who you and what you do not for what you look like. I will now keep this in mind during therapy sessions.

I would like to thank Portia from the bottom of my heart for having the courage to write such a powerful memoir that will help so many. You are an inspiration and hero to many including me: giving me hope that I will be okay and that I will find love and hope is the tool I need to continue my journey.

“Most important, in order to find real happiness, you must learn to love yourself for the totality of who you are and not just what you look like.” 
― Portia de Rossi 

Thank-you 
Portia.

 

Need Help?
Life Line: 13-11-14

Kids Help Line: (For Individuals Aged 5-25): 1800- 55- 1800

 

With admiration and hope,
love

Shaz

Xx

© COPYRIGHT 2013 ‘Beautiful Contemplations’ Founded by Sharlene ‘Shaz’ Sturk

 

Unbearable Lightness: A Story of Loss and Gain

Portia De Rossi 

http://books.google.com.au/books/about/Unbearable_Lightness.html?id=i352L03hNqQC&redir_esc=y